Endocrine Resources

Nationally-Based Professional and Governmental Organizations:

• MedlinePlus is a site offered by the U.S. National Library of Medicine and the National Institutes of Health.
  • It is continuously updated and organized to provide useful and readable information to health professionals and patients alike. Users may search by health topic, access an illustrated medical encyclopedia, and browse a large selection of highly educational interactive tutorials.
    http://medlineplus.gov/
    
    
• The American Thyroid Association – www.thyroid.org
  
  
• The American Association of Clinical Endocrinologists – www.aace.com
  
  
• The American Association of Endocrine Surgeons

• Position statement regarding treatment of primary hyperparathyroidism (2005) http://www.endocrinesurgery.org
  
  
• The National Institutes of Health – www.nih.gov
  • Endocrine system health information page
    http://health.nih.gov/category/EndocrineSystemHormones
    
  • 1990 NIH Consensus Development Statement on Primary Hyperparathyroidism
    http://consensus.nih.gov/1990/1990
    AsymptomaticHyperparathyroidisim082html.htm
    
  • 2002 NIH-sponsored Consensus Panel Summary Statement on Primary Hyperparathyroidism (available from The Endocrine Society)
    http://jcem.endojournals.org/cgi/content/full/87/12/5353
    
  • 2002 NIH Consensus Development Statement on Clinically Inapparent Adrenal Masses (Incidentalomas)
    http://consensus.nih.gov/2002/2002AdrenalIncidentalomasos021html.htm
    
    
• The National Cancer Institute – www.cancer.gov
  • Information on thyroid cancer
    http://www.cancer.gov/cancertopics/pdq/treatment/thyroid/patient
    
    
• The National Kidney Foundation – www.kidney.org
  • Guidelines for management of bone disease and hyperparathyroidism in patients with chronic kidney disease
    http://www.kidney.org/professionals/kdoqi/guidelines.cfm

Patient-Driven Organizations:

• Adrenocortical Carcinoma Reference Information
  • http://www.adrenalcancersupport.org/
    
    
• The Light of Life Foundation is a organization for Thyroid Cancer Support
  • http://www.checkyourneck.com
    
    
• Thyroid Cancer Survivor’s Association, Inc.
  • http://www.thyca.org
    
    
• VHL Family Alliance
  • Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by Von Hippel-Lindau disease.
    http://www.vhl.org/
    
    
• Young Adult Cancer Survivors, Washington DC.
  • A site and community founded by one of our patients, herself a thyroid cancer survivor.
    http://www.yacsdc.org/

Institute for Clinical Systems Improvement:

• https://www.icsi.org/

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